Italian League Cystic Fibrosis is the official Italian registered non-profit organization (ONLUS in italian language). It is a secular state-approved organisation.The LIFC is a federation and gathers together the 20 Regional Associations in Italy, which are dealing with CF.
The LIFC, active since 30 years, represents about 15’000 people closely affected by this pathology (about 4’500 patients and their families) who dedicate their skills, their personal time and often their own resorces to one common aim: fight against CF.
The LIFC act is in close collaboration with:

• The SIFC (Italian Society CF) which is a scientific multidisciplinary and multiprofessional society who develops scientific and curative activities for CF patients
• The FFC (Foundation for the research on CF) which concentrates particular impulsions on the research.

The main objectives of the LIFC are:

•  to promote and develop the scientific research as the basic and essential way to fight the CF
•  to improve medical care, as well as the information and education of the patient and their families
•  to improve the access to care to make the best care available to every CF patient in the country
•  to encourage the quality of life for the patients and his family everywhere in the country.

In Italy there are 43 specialized centers of CF care, 3 centers for adult patients and 40 centers mixed for children and adults. Generally, the treatments are free of charge, as well as lungs’ transplant.

Since 1992, a law has instituted a neonatal screening in the whole country, but in several regions this law is still not in application.
The European standards for treatments and the entire medical care are well known in Italy, but the resources are quite unequally distributed in accordance with the regional means. This induces especially shortage of qualified staff and relevant differences between regions and CF local centres.

Registered Office:
Viale Regina Margherita, 306 - 00198 Roma (RM)
Tel/Fax: +39.06.442.548.36 / mob. +39.328.445.03.76

In Italy, about 2.5 millions persons are carrier of the gene causing the Cystic Fibrosis (most often without knowing it) and 1 child each 2500 newborn is born affected by the disease.

Declaration from Franco Berti, President of the LIFC

Our main goal is to support the research and to enable any improvement of the quality of life for the CF patients, which are becoming conceivable and applicable thanks to the research. To achieve our goal we need economical and scientific support, awareness of the public opinion and make the employment for the FC patients a value and a knowledge undeniable for everybody.

1. To know more about LIFC, download now its new booklet in Italian language
2. List of the Regional Associations, adresses and links
3. Newsletter in Italian
4. News and Events in Italy (in Italian language)